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Member News – Wilmer Eye Institute – Johns Hopkins

2022-05-16 10:48:37
Uniquely Positioned to Tackle the Most Challenging Cases

Uniquely Positioned to Tackle the Most Challenging Cases

By age 18, Henry Harten was legally blind, the result of a rare genetic disorder. Meet Henry and the team whose careful collaboration allowed him to see the world clearly for the first time.

Victor Harten’s perfect towheaded baby boy, Henry, was little more than a year old when a Seattle neurologist diagnosed him with Hurler syndrome, a rare genetic disorder characterized by an enzyme deficiency that allows large sugar molecules to build up in all the tissues of the body, causing catastrophic damage and, if untreated, early death.

“After crying for a week, I got on the phone and learned we could arrest his disease with a stem cell transplant,” Victor says. Henry underwent the stem cell transplant — a nine-month process. Afterward, Victor and Henry moved back to Victor’s home state of Texas to be near family.

Henry, now 21 years old, is the spunky veteran of some 40 surgeries to correct the damage to his joints and spine wrought by Hurler’s during his first year of life. But one of the things that bothered him most was yet another common symptom of the disease — cloudy corneas.

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Wilmer Eye Institute: #1 ophthalmology research program in the U.S

As the #1 ophthalmology research program in the U.S., Wilmer Eye Institute has a big presence at the nation’s biggest ophthalmology research meeting. Here’s a look at what some Wilmer presenters will be talking about at ARVO 2022. https://www.youtube.com/watch?v=Avb_UrZGLRU

International Schwartz Rounds: looking for panelists

During the coronapandemic the WAEH together with the team from Moorfields organized two webinars about the Schwartz Rounds. This year we would like to organize these rounds again and are looking for panelists!  Schwartz Rounds provide a structured forum where all staff, clinical and non-clinical, come together regularly to discuss the emotional and social aspects […]

Dutch BICAT study proves safety and effectiveness of immediate sequential bilateral cataract surgery

Image caption: “in ISBCS, transparant eye patches are used (right picture) instead of a non-transparant eye patch in DSBCS (left picture)” News from our full member: University Eye Clinic Maastricht, the Netherlands Immediate sequential bilateral cataract surgery (ISBCS) offers comparable safety and efficacy to delayed sequential bilateral cataract surgery (DSBCS), according to a major Dutch […]

Moorfields Eye Hospital NHS Foundation Trust: Understanding the impact of “hand‐holding volunteers” providing theatre support during surgery ‐ The patient perspective

News from our founding member: Moorfields Eye Hospital The majority of cataract, and some glaucoma eye surgeries is undertaken using local anaesthetic and can be uncomfortable for patients and make them feel anxious. This can be very unpleasant and cause anxiety in patients. Moorfields Eye Hospital NHS Foundation Trust uses volunteers in a “hand‐holding” role to provide comfort […]

As WAEH we are there to help….

Olena Kurylo was blinded in her right eye when a missile destroyed her apartment block in the opening hours of Russia’s brutal invasion last month. […] She was in danger of developing a fatal infection from her wounds. It was clear that Olena needed urgent surgery – but first she had to escape what had […]

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Maaike van Zuilen,
maaike.vanzuilen@waeh.org

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