Uniquely Positioned to Tackle the Most Challenging Cases
By age 18, Henry Harten was legally blind, the result of a rare genetic disorder. Meet Henry and the team whose careful collaboration allowed him to see the world clearly for the first time.
Victor Harten’s perfect towheaded baby boy, Henry, was little more than a year old when a Seattle neurologist diagnosed him with Hurler syndrome, a rare genetic disorder characterized by an enzyme deficiency that allows large sugar molecules to build up in all the tissues of the body, causing catastrophic damage and, if untreated, early death.
“After crying for a week, I got on the phone and learned we could arrest his disease with a stem cell transplant,” Victor says. Henry underwent the stem cell transplant — a nine-month process. Afterward, Victor and Henry moved back to Victor’s home state of Texas to be near family.
Henry, now 21 years old, is the spunky veteran of some 40 surgeries to correct the damage to his joints and spine wrought by Hurler’s during his first year of life. But one of the things that bothered him most was yet another common symptom of the disease — cloudy corneas.
The eye, which is more easily accessible than organs shielded by skin and muscle, often reveals insights into a patient’s overall state of health. The Wilmer Eye Institute’s Annual Report details stories of lifesaving discoveries, innovative educational initiatives, and groundbreaking research that are advancing patient care and the field of ophthalmology. Read the report: https://www.hopkinsmedicine.org/news/publications/wilmer_issues/annual-report-2022
REMINDER: Call for Projects Interested in funding for a project? The WAEH can finance two to three projects per year with 7.500,- euro. You can use the following WAEH project format to send in your project proposal: WAEH project proposal.Round 1 – Deadline 31 January 2023– Incoming proposals reviewed by board in February / March board meeting– […]
Longitudinal Use of Telehealth During the COVID-19 Pandemic and Utility of Asynchronous Testing for Subspecialty-Level Ophthalmic Care
Publication by WAEH Member UCSF – Department of Ophthalmology Importance: Telehealth in ophthalmology has traditionally focused on preventive disease screening with limited use in outpatient evaluation. The unique conditions of the COVID-19 pandemic afforded the opportunity to evaluate different implementations of teleophthalmology at scale, providing insight into expanding teleophthalmology care. Objective: To compare telehealth use in ophthalmology […]
The Victoria Cohen Scholarship 2023/24 – open for applications
The Victoria Cohen Scholarship is now open for applications from aspiring ocular oncologists in need of financial support throughout their fellowship. The Victoria Cohen Eye Cancer Charitable Trust was established in 2021 in memory of the late Victoria Cohen, former president of ISOO. Victoria was always keen to support the next generation of eye surgeons […]
Eye cancer is a terrible disease and there are not enough ocular oncologists in the world. Training takes time and money. The Victoria Cohen Eye Cancer Charitable Trust provides scholarships to support aspiring ocular oncologists through their training and education. The deadline for applications for the Victoria Cohen Scholarship 2023/24 is the 31st March 2023. For […]